A atuação dos Músicos do Elo em um centro de hemodiálise: uma experiência humanizadora que melhora a qualidade de vida e sintomas de depressão

Abstract

Individuals with Chronic Kidney Disease (CKD), besides having to stay on treatment by hemodialysis (HD) for four hours, three times a week, also undergo important changes in their way of life, in family and social relationships that culminate with the impairment of their quality of life (QoL) and they re also at higher risk of depression. Similar to what is already being done in several countries of Europe, we believe that the intervention of musicians specially trained to work in hospitals and other health care areas (Músicos do Elo) would be a humanizing strategy for the individual with CKD in HD which could result in improvement of these adverse conditions. Objective: To identify the possible influence that the performance of the Músicos do Elo during HD sessions produced in QoL, in parameters of depression and in the subjective sense of well-being of patients undergoing HD at Centro de Diálise e Transplante Renal (CDTR) in Sorocaba, SP. Methods: The study included 24 patients, 18 years or older, on hemodialysis for more than 6 months at CDTR. Of these, 12 patients were included on control group (no intervention) and 12 patients underwent the intervention of the Músicos do Elo for five months on regular HD sessions on Saturdays. We evaluated the QOL by the questionnaire Kidney Disease and Quality of Life - Short Form (SF-KDQOL ) - v.1.3 and state of depression by the Hamilton scale - The Hamilton Rating Scale for Depression (HAM-D). Also, was applied to the patients an open questionnaire to assess how they accept and how the intervention affects their lives, and the speeches of the interviewees were submitted to thematic analysis and then to the technical analysis of the Collective Subject Discourse (Lefèvre). Results: We observed favorable changes in QoL in the intervention group. Markers of depression were high in both groups, with a significant improvement in the intervention group only. Patients fully approved and expressed positive feelings during and after the intervention (attention, host interaction, family ties, pleasant memories). We conclude therefore that the humanizing intervention proposed by Músicos do Elo brought improvements to the environment and to the QoL and well-being of patients with chronic renal failure on hemodialysis